Max Isaac L's online diary (December 1994-January 1995)


This diary is pulled together from updates that my dad sent to his friends about my progress. Don't just read --- send him a note!

The entries here are arranged from most recent to least recent. That way you can find out the latest news easily!

Monday, January 30th

It's not just that we have a baby that makes it difficult to lead a normal life right now. Lisa is on ``nightowl'' meaning that she works all night and sleeps all day. I'm trying to write a thesis proposal and take care of Max. We live a 6 hours drive away from my parents. And, since Max was a preemie and this year has been very bad for getting the RSV respiratory virus, we can't even really leave the house with him until springtime. Come April, several of these will have changed and we can begin to think about finding some balance in our lives. Right now we are striving to hold together long enough to make it until then.

Max trick for the day: I had him playing piano again. He's getting better at hitting different notes (including the black ones) and even getting some chords into the action when I turn on the casio-matic chord feature on our keyboard. The amazing thing is that when we brought him home his thumb-to-pinky span was just about the width of a key. Now it's about three keys! We can't expect too much jamming until he can reach about an octave.

Thursday, January 26th

On another topic, Max tried oatmeal yesterday and seemed to enjoy it. This continues his streak of enjoying every single thing we've ever fed him. He's probably already tried as many foods as I had by age 20.

Today I learned that Max's head control is really quite impressive. His bad left ear is feeling much better so I thought it would be a good time for him to learn to rest his head on it. (I think it's really important because the right side of his face is getting flat and the hair on his right side is almost non-existent.) So I put him on his left side. He was able to lay on his left side with his head straight out to the side (i.e., not resting on the ear). He held this position for several minutes before he got angry and actually rolled himself into a ``safer'' position. Impressive but probably not a good thing. So I'll think about how to convince him that it's ok. Only other thing is that he has developed a little cyst on his gums that Pearl and I thought might be a tooth. It's not and it will go away on its own shortly.

Tuesday, January 24th

Max is getting very good with his hands. He plays with his little animals and makes them rattle and he plays ``midline games'' (bringing his hands together in front of him---very important developmentally). He has begun to make ``oooh'' sounds (as in ``goo'') and uses that sound to ``talk'' to afghans. We're not sure why but he seems to enjoy touching knit afghan blankets (one made by Grandma Betty and one by Jenn) and ooohing at them. It's hysterical.

I'm doing ok. I was home with Max yesterday and I had fun with him and was productive. We'll see if we can keep it up.

Friday, January 20th

Thanks for meeting Max (via his web pages). Babies Max's size didn't survive 6 or 7 years ago. There have been a couple of innovations in medicines and in ventilator technology. But even so, Max's doctors and nurses didn't think he was going to make it in the beginning. So I give my credit to medicine and to luck and to Max for fighting so hard.

Thursday, January 19th

Max is resting. He's doing well, nothing too new. He enjoyed his first day with our new babysitter yesterday though he slept through most of it. He slept 8 hours again last night (making it three out of three nights that Lisa has been away doing her night-owl shifts). His latest physical accomplishment is laying on his back and pushing with his feet in alternation. He seems to love the way it feels to push his feet against a firm pillow

Wednesday, January 11th

(This entry is not about Max but it is relevant...)

Lisa has been doing make-up call for the last few weeks. She starts full-time after the weekend. That's when my schedule really hits the fan, I guess. We're looking for someone to come in twice a week to let me have some uninterrupted work time. Unfortunately, none of our first 4 interviews showed up. We have a few more possibilities so we'll see what happens. In any event, Lisa's sister is going to come down from Boston every Tuesday to help out.

(I was asked about Max's hospital bills...)

Lisa's insurance is with a community health plan and they've picked up all the bills. I don't even know for sure what they came to. I am curious but in a sense I think I'd prefer not to know. I don't think Lisa got any professional courtesy since the insurance company paid the bills. However, I think one of the hospital administrators thanked her for not getting a certain doctor-oriented insurance company because they make the hospital eat most of the (quite substantial) cost. I don't know the details.

For the holidays we had our parents up for Christmas and New Years and that allowed us to go out to dinner alone and with some old friends (sans Max, for the first time).

Tuesday, January 10th

Max is doing very well. He's over 10 pounds and developmentally on target for a 2 1/2 month old (which is how old he should be). We just got back from ``followup clinic'' which is run by the people who took care of him when he was first born. They think he's doing great also.

Some of his latest tricks include: smiling, cooing, three kinds of laughing (a low ``huh-huh'', a coy laugh, and a more of a high-pitched squeal), clunking his hands down on our little synthesized piano, and balancing his head as if it were a broomstick (actually, he's getting better at that now). Recently he's started some simple reaching motions but his dexterity is still pretty minimal. Very expressive face though.

Just got back from ``followup clinic'' with Max. They think he's doing very well (``Max looks great''). Latest statistics are:

She says that weight catches up, then head, then length so he's right on target (actually, even better than expected). One funny number is plotting weight against length. He's stubby-boy.

Trying to arrange for babysitting has been a hassle. We've had 4 interviews scheduled and no one has shown up yet. Two were canceled an hour or so in advance and the other two just didn't show up.

Friday, January 6th

Yesterday was a big day for the little guy. He had his first big exam at ``Early Intervention.'' This involved trying to get him to do little tricks (follow the light, giggle, touch things). The physical therapist and the speech therapist then tallied things up. He scored very well, basically average (1-3 month equivalent) on all parts of the test. The only little problem was that he scored low in the category of ``gross motor skills.'' The reason for this is that he missed one very important trick: turning his head 180 degrees. Not only won't he turn his head all the way, but it is almost impossible to force his head to the side because he is very shy about bumping his bad ear. I actually tried to get him to do this a few days before the test and as soon as his ear touched the ground, he shrieked in pain.

The Early Intervention people gave us several brochures that I should be able to use to help Max move to the next level without letting his ear get in the way. All in all, I think it went very well.

Yesterday evening we took Max in to a studio for a photo shoot. He wore his little penguin outfit and was posed on several different backgrounds. The photo person did a good job of getting him to smile so we think several of the photos will come out quite nicely. We get to see the proofs next Thursday.

We left from the photo place to see our friends Phil and Lauren and Max's friend Molly. Molly is so tiny! She slept the entire time (except for briefly when she was eating) but Max got a chance to stare at her. It was very cute. At the end of the evening they were asleep in their carrier seats next to each other and we got lots of pictures.

Today was a pediatrician's appointment. He gained about an ounce a day since his last weighing and is now up to 9 lb, 13 oz. Big boy! That should put him over 10 pounds by Tuesday.

Sadly he got a few shots and they are making him cranky right now. I should sign off and help Lisa make him feel better.

Thursday, January 5th

(It's been awhile since my last update. Here are some snipets I've sent out over the last few days. -MLL)

(January 5th) Today he has ``early intervention'' and tomorrow a pediatrician appt. Then early next week there is a neonatal follow-up and then about a week later, his initial appointment with the urologist (finally).

(January 4th) Max slept for 3 hours in his crib today (while I was out selling the car). He's eating bananas and peaches now.

(January 3rd) He seems to be doing fine. Lisa was on overnight call last night and she's asleep on the couch with Max asleep in his chair next to her.

Friday, December 23th

Max is doing great. He's now smiling at us (beaming, sometimes) on a regular basis. He's enjoying (loving) a bowl of rice cereal each night. Lisa is gearing up to return to work full-time in the middle of next month. We're both worried but confident that things will work out. She's gone to work a few times in the last week to start catching up on call (so she doesn't get swamped the minute she returns).

We took him on a little outing today. One of Lisa's colleagues had a party and we brought him along. We also took him car shopping yesterday. Grueling, but he handled it well (until we got home and he got fussy). It seemed only fair to bring him because we're getting the car to have something safe to transport him around in.

Monday, December 19th

Max had an interesting night last night. We fed him cereal/apple juice at 4:30pm and 7:30pm and he had a great time. He woke up several times over night but only needed to be fed once. Not too bad.

His ear is doing ok. There is still some scabbing (the dermatologist wants that to disappear before we discontinue the medication) but it isn't sore any longer. He still hates getting the medicine put on but now he doesn't scream if his ear gets bumped accidentally.

He is getting very good at peek-a-boo. He smiles and almost giggles when we say ``There he is!'' He's enjoying his other games more as well and is almost starting to reach for things on his own.

Friday, December 16th

Max has had a tough week. We took him to the neurologist on Tuesday and he got an EEG to see if there was a neurological basis for some (slightly strange) behavior that he exhibits when eating. He looked pretty funny with his entire head covered with electrodes. We haven't gotten the results back yet.

Yesterday morning we went to the hospital and Max got an echocardiogram. This was to follow up to track the progress of the clot he developed in his heart while in the special care nursery. Again, no results yet. Then, in the afternoon, we saw a pediatrician and dermatologist to follow up on the infection Max developed on the big birthmark on his ear. That, fortunately, is doing quite well.

While we were there, we had his weight checked because he has been eating substantially less than the pediatrician said he should be. We were very worried that he had actually lost weight since the previous visit. In fact, he's doing ok. He's up to 8 pounds, 5 ounces which puts him just over the ``8-times-his-birthweight'' mark. Not bad!

Wednesday, December 14th

Max is great. He slept almost the whole night last night (11pm-5:40am). What a good boy! Hopefully it's the beginning of a pattern and not a fluke.

Tuesday, December 13th

Just got back from Max's neurology appointment. He looked pretty funny with all those electrodes on his little head. We probably won't get results back until Friday.

Monday, December 12th

Max is cooing and smiling right now but he's not very interested in eating.

Saturday night we fed him cereal for the first time with a tiny little spoon. It surprised him but I think he liked it. It was so cute. Right now Max is having a ``chat'' with Lisa in which he lets out a high-pitched squeak every 5 seconds. I guess he's in a chatty mood.

Friday, December 9th

Meanwhile, Max is doing great. Some of the latest events are: graduating from newborn diapers to infant diapers (he grew out of the preemie diapers long ago), sleeping in his own room for the last two nights (meaning that Lisa and I can finally sleep in the same bed again), and reaching 7 pounds, 12 ozs.

Tuesday, December 6th

I'm writing a quick note while Max is asleep. Apparently Max's announcements are arriving because we've been swamped with gifts! We get 2 or 3 each day from UPS and 1 or 2 from USMail. About half the gifts come from people we don't even know and only barely recognize as being a part of one side of the family or the other. Lisa's been trying to write thank you notes but she feels it's a losing battle.

The other news is that Lisa is working out the details of when she'll go back to work and what she'll be responsible for. Apparently some people would like to saddle her with all the calls she missed to be made up before June. That would mean she'd be on call just about every weekend. She met with the department chair yesterday and he'll report back to us in the next week or so. Max, for his part, is wonderful.

Well, Max is fussing. I've got him on my lap right now. Gotta go!

Monday, December 5th

Lisa's going to work today to negotiate her schedule for the rest of the year. Apparently the chief resident would like her to make up 6 months of call before June meaning that she'd be on every weekend except one or two for the next 6 months. It's hard enough to go back, let alone to have to give up every weekend.

Friday, December 2nd

Max is doing fine. He had an appointment yesterday to have his ear looked at again so now he's on more medicine. If the new medicine doesn't clear things up a bit, then they'll try steroids. The good part of using steroids is that it would probably shrink the whole hemangeoma significantly. The bad thing is that no one knows why it works.

We're planning to throw Max a ``brit chaim'' probably in spring or early summer in New Jersey. A brit chaim is something reform Jews invented for girls --- it's a bris without the circumcision. His circumcision will be a major medical event (since there are several problems that will be fixed surgically at that time) so we figured we'd have to make a party for something else.

Max is now over 7 1/2 pounds, presumedly from the pureed latkes we've been feeding him, and he's getting very chatty (in terms of cooing). Lisa feels like she never wants to leave him. I seem to remember something similar happening to an acquaintance of mine. I think I understand a bit better why someone would feel like she wanted to ditch her promising career to hang out with a baby.